Thanks everybody for your awesome questions! I got quite a few and I have answered them all individually below:
Which Disney character is your favourite? What’s your favourite pizza topping. What’s your #1 sensory nightmare? #Thanks! From @adam62139
Have you used weighted blankets? If so, did you increase the weight of it as you grew? Did you ever stop using it? From @mikeblair3
‘One of the generally accepted principles of calculating the correct blanket weight is to take 10% of the users body weight and then add a pound. eg – if you have a child that weighs 5 stone this equate to 70lbs (5 x 14). Take 10% of 70lbs = 7 add a further 1 = 8lb blanket’
I definitely increased the weight as I grew as I found I needed more pressure and a longer blanket as I grew! I have done a blog post on my experience hiring and then buying a weighted blanket which might help further here
I unfortunately suffer a lot with night sweats so I find especially in the hotter months I have to sleep without it. I put my weighted blanket (in its own cover) over the top of my existing duvet.
Do you use any other tools or equipment to help? From @sensarounduk via Twitter
Hey! I have two questions, I don’t know if you’ve written about these things before here, but here they are: Do you use a time management or task management system? If yes, did it help with SPD? From M.O via comments.
Do you feel scared when you have a melt down, not to be in control of your body? xxx From Many of Us 1989 via comments.
Hi! I do feel very scared and also very very alone when I have a meltdown because I cannot explain how I am feeling or acting. I can only express myself in physical emotions which is usually in the form of crying. Crying obviously draws attention to me which means I get asked a lot of questions but I can’t answer them as my body is effectively logging off and shutting down like a computer!If you look on the National Autistic Societies website theres a great quote: ‘If I get sensory overload then I just shut down; you get what’s known as fragmentation…it’s weird, like being tuned into 40 TV channels.’ This is exactly how I feel!
What are you most over and under sensitive to and what are your copping strategies? From Chrissie via comments.
Hey Chrissie! I am most oversensitive to:
- Loud noises
- New foods or anything with any herbs or spices
- Sudden or unexpected touch
- Most smells that aren’t neutral and I dislike people with distinctive perfumes, shampoos, etc.
- Most textures (even underfoot when walking!)
- New environments
- Crowded places
- Bright or flickering lights
- Supermarkets – they are too colourful with all the products!
- I have an inability to cut out sounds like background noise, leading to difficulties concentrating.
- I have a low / non-existent pain threshold (even though I don’t think I do because everything that hurts REALLY HURTS to me!)
- I can only tolerates certain types of clothing or textures.
- And much, much more that I can’t think of right at the moment!
- To the space around me. I cannot walk in a group of people – I constantly bash and walk into others!
- I have to have tight hugs and use a weighted blanket because I find touch very difficult.
- I have the need to rock and swing to get some sensory input.