Medications and being sensory

I’ve been wanting to write a post on my feelings on medications for a while. Have they helped me? What have I found difficult about them?

Medication is weird. Each time I try a new one it’s like a huge big change and I battle with the pros and cons each time.

Mental health medications:

I’ve tried them all. Well it feels that way. Since the age of 15/16 I’ve tried all sorts. Some with weird side-effects and some that have proven to be helpful enough that I’ve stayed on them for years. I have been/I’m still on a few. I’ve tried anti-depressants, anti-psychotics, anti-anxiety medication, etc. I’m currently on two medications for my mental health. I use a weekly pill box so I know what to take each day.

Annoying side effects I’ve come across:

  • Never feeling full and always feeling starving hungry
  • Muscle twitching. Not ideal when you’re sat in a meeting at work and your entire leg twitches throwing you forward in your seat a bit (true story #lovinglife)
  • I regularly forget to take the flipping medication (not a side effect just Emily’s rubbish memory)

Cholinergic Urticaria:

Think of it like a rash / hives. I take anti-histamines to control it, otherwise I flare-up and look like a tomato. Think Violet from Charlie and the Chocolate Factory (but red) and you’re not far off. If I’m honest I still flare-up and go bright red and develop a nice patchy rash in these places:

  • All over my face
  • Chest
  • Arms
  • Hands / knuckles
  • Legs / knees

Very random. Read more about my cholinergic urticaria in a previous post here: Cholinergic urticaria…and what on earth it is.

Other:

Night sweats. I take a ridiculously accurate amount – 3 quarters of one tablet that’s how sensitive I am to this one. If I take a full tablet I find I don’t pee. Like all day. At all. This is not good apparently. (It’s a tablet that primarily elderly people can take to improve incontinence issues but it is also used to treat excessive sweating. Interesting right?!)

My conclusion:

I think medications have helped me. In the long run. They never seem to kick in for what seem like months and then I feel more stable without realising and wonder if it’s the medication that’s built up in my system and is finally kicking in. Of course I’m no doctor or medical professional. Some people just don’t find medications work for them or have never tried them. And that’s okay too. It’s so hard to tell what’s helping and what isn’t so I totally get that. For me it’s something I think I’ve found beneficial and I have followed my own doctors advice on what he feels is best for me.

One thing I want to mention is that side effects do indeed suck, I 100% feel for all those out there who find their medication is helpful but are then are stuck with annoying and sometimes plain weird side effects.

Why not listen to my podcast surrounding the idea of medications and mental health here

And just a tiny bit of humour to finish:

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Illustrations in the slideshow by the epic illustrator: Ruby etc

 

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Sensory Supermarket Trip 🛒

Hi everyone! This video documents my visit to a supermarket (in the UK) as a sensory-person! I explain throughout the video via captions how I am feeling and what is affecting me. Do you also struggle in supermarkets or shopping situations? If you have any good coping mechanisms feel free to share them in the comments below!

Sensory Festive Season 🎄

Ah yes the festive season is well and truly upon us. Welcome to the ‘random questions Emily gets asked at this time of year’.

Yes I went to my team dinner at work. Yes it was painful. Yes I went to our company Christmas party. Yes it was painful and LOUD. Yes I got dragged onto a dance floor against my own wishes. But I survived the environment. Yet I miss ONE cocktail night out and a co-worker comes up to me the next day and says ‘didn’t see you at the pub last night’ and catches me off guard. UGH.

I’m trying to navigate this sensory world and my limit is usually one social / festive gathering and I managed two out of three! So what would make my festive season that little bit better? Less questions.

1. I don’t drink alcohol. For some reason this throws everybody and I am questioned beyond belief. I don’t like the taste. That’s all there is to it! And yes, I’ll have a lemonade instead please.

2. I don’t eat much meat. This throws everybody. Again: I don’t like the taste (although chicken is okay sometimes). It’s easier to say I’m a vegetarian 🌱

3. I do find it difficult to dress up. I can wear a dress but I don’t like anything ridiculously tight or short. And high heels are a bit of a no-go due to tripping over my own feet normally in trainers everyday!

4. I’m dealing with sensory stuff in a new environment and holy moly all these questions do not help!

I can have fun without drinking, eating and dressing up. (Aka: cosy nights in watching Bake Off, Top Gear, Brooklyn 99 or a Louis Theroux documentary. Equally tucked up in bed with a book is just great too!)

Drawing by me. This post featured on my 21andsensory Instagram

You’re not a mess.

Screenshot 2018-12-01 at 14.21.53

‘You’re not a mess. You’re brave for trying’. It’s so so easy to put yourself down these days. Everything seems that much more difficult to deal with, whether its sensory or adult stuff like admin, self-care, tidying, paying bills. The stuff everyone else makes look easy. It’s easy to think of yourself as a mess. I think of myself as a mess. That’s not nice to write but it’s true. I feel like I am bumbling along attempting to deal with things as they come my way and ultimately feeling overwhelmed sensory and mental-health wise. 

But I started wondering. What if everyone else (the people I think are super cool and have got it altogether in life) also think of themselves as a mess? What if we are all just walking around and thinking like this? I know it comes back to the whole ‘comparison’ thing. Yeah it’s super easy to constantly compare yourself to others because thats all that’s ever in front of you. Instagram, Twitter, Facebook, YouTube, Snapchat it’s never-ending all the different platforms that throw you happy people all the flipping time. It’s tiring.

2018 has been really hard for me and not a lot of people are aware of this. But to share a snippet I would like to mention how awful life feels when everyone is happy and you feel like an utter mess. A social media example: I tap on the Facebook app on my phone and instantly I’m thrown into newly wed couple photos, new baby scans, new travel adventures, graduations, moving house key photos, engagement photos. ALL I WENT ON FACEBOOK FOR WAS TO GET RID OF THE NOTIFICATIONS AND MAYBE SEE A CUTE DOG VIDEO. Instead I am reminded of how I am not progressing in life and everyone is having a great, lovely, happy time. 

The thing is THEY AREN’T. And I am brave for continuing to remember that and to try and create my own happiness. I have learnt to appreciate more of the little things. I love cups of tea. I like sunsets. I like new fineliner pens. I like my comfy dressing gown. I love baths. I enjoy eating blueberries. These give me tiny happiness bursts. Find the tiny things that bring you joy. And flipping hold onto them so tight because they really can help. I’m not a mess. And neither are you or anybody else you know.

We are all figuring our own stuff out in life, yeah some people more then others, but nobody is a mess. I think we’re all braver then we think.

(P.s Note to self: stop opening Facebook just google dog videos)

This post was originally posted on my Instagram @21andsensory

I was interviewed!

Hello. This is just a little blog post to say: I was interviewed on a podcast!

The lovely people from Chewigem interviewed me and the episode titled: ‘SPD and adulthood with 21andsensory’ came out today! If you have a spare moment why not check it out here:

https://chewigem.podbean.com/e/spd-and-adulthood-with-21-and-sensory-sensory-matters-31/

Also you can check out the podcast here on Apple Podcasts

I am a Chewigem Affiliate! They are company who have years of experience, designing, adapting and creating a range of chewing, fidget and sensory aids for children and adults. Check out their website.

I’d love to hear your feedback and any comments you have ☺️

Chewigem October Offer…

Hi everyone! I thought I’d mention that Chewigem have an awesome October offer on their skull and cat pendants…

BUY ONE GET ONE HALF PRICE!

If you’d like to redeem this offer please click the links below and don’t forget to pop the code: ‘Halloween’ in at the checkout! 🎃🦇👻

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Let me know if you make use of the offer and what your favourite chewellry item is!

I am a Chewigem Affiliate! They are company who have years of experience, designing, adapting and creating a range of chewing, fidget and sensory aids for children and adults. Check out their website.

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My fidget and stim sensory box!

Hi everyone! I thought I’d upload a video on my fidget and stim sensory box. It’s travel friendly and super useful when on the go! Feel free to subscribe to my YouTube channel: 21andsensory. All the links are below…

I am a Chewigem Affiliate! They are company who have years of experience, designing, adapting and creating a range of chewing, fidget and sensory aids for children and adults. Check out their website.

Thanks for watching!