A sensory experience review…

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I was lucky enough to go on a little adventure a few weekends ago to the Isle of Wight (UK). It’s a lovely little island with loads to see and do – so much so I already want to go back and explore more!

Whilst I was there I went to an AWESOME water show called Waltzing Waters which I thought I would do a little review about.

Here is some more information:

“The world’s most elaborate water, light and music production. “It’s like nothing you’ve ever seen before”…a triumph of artistry and engineering. Visitors are overwhelmed by thousands of dazzling patterns of moving water synchronised with music in spectacular fashion.”

Anyways: it was SPECTACULAR. So kind of think of it as awesome music throughout the ages coordinated to a water display. There were hundreds of nozzles spraying ridiculously high-powered jets of water so high and then falling and twirling into phenomenal shapes.

I know these sorts of water shows can be quite popular at resorts in America and especially in places like Dubai in shopping centres and public places. Somehow I had never really come across one before and because this show was based on the Isle of Wight only a handful of people turn up to each set time – which was fab as no crowds and lots of seating to choose from!

I just wanted to do a little write up to almost sort of say as a sensory being how lovely I found the whole show and that I really recommend seeing a show whether you have sensory problems or not 😊

One of my next blog posts will be a Q&A on all things sensory! Feel free to comment below with any questions you might have – tweet me or comment on my Instagram!

Awesome Video ResourcesʉϬ

So I thought (seeing as I watch a lot of videos and tutorials on Youtube) it might be quite good to put together a list of helpful videos / YouTube channels to share on my blog…

Megan Rhiannon:  Megan is a 19 year old Autistic girl who makes fab Youtube videos and autism talks on her channel. Be sure to follow her for great tips and advice.

Routines can often leave us feeling bored and uninspired. Sonia is a brilliant YouTuber and artist who explores the importance of Escape as part of the creative process. Cheer up after a bad day or week with some of Sonia’s suggestions!

Lucy Moon is a fab YouTuber who openly discusses her battles with anxiety and mental health. She does a lot of chatty videos as well as vlogs and provides some great advice.

Becky (presenting the videos) is the founder of Sensory Spectacle. Sensory Spectacle share lots of information on Facebook, Twitter, Instagram, and also provide experiential learning environments which can be used in workshops, at events, etc. Becky also is invited to speak at conferences about sensory processing difficulties and the experiential work she is doing.

This video is part of a  ‘Homelife’ series is a short video each week sharing information about why we might see some of these characteristics in people with sensory processing difficulties.

Conan Grey is a young creative and Youtuber. In this video he discusses how to deal with mood swings, anxiety and being able to relax (as well as get on with your day) no matter how you are feeling.

Amelia and Grace Mandeville are two sisters who enjoy making Youtube videos about their daily lives, experiences and even film the odd comedy sketch too! This video discusses how to survive school and some top tips.

Charlotte is a lovely YouTuber and also a fashion promotion student and intern, occasional blogger and veggie enthusiast! This is a great video describing her first year at uni. She discusses a range of topics including loneliness, excessive working and anxiety.

ASMR / Relaxation videos: I can’t not mention them! If you search on Youtube for ASMR videos (and google their definition) they are some of the most relaxing videos out there!

So there you have it – 8 brilliant YouTube channels which I have found super helpful – let me know of anyone I should be following and that I can add to my list!

21andsensory Podcasts!

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So I went and bit the bullet as you can probably tell by the title…and my brand new podcast is live! My podcasts are on a site/app called Anchor – it’s a free podcast and audio platform. Feel free to sign up and create an account and you can download the mobile app and listen on the go (you can also listen without signing up!).

The Anchor app will allow me to record on the go (without a computer) so I can create podcasts anytime anywhere and add new content regularly! I’m hoping to use it as almost a form of an audio diary and share my sensory experiences as and when they happen! Tips and advice will definitely feature so watch this space…

You can search for my username on Anchor which is simply: 21andsensory.

Or listen here: Anchor FM: 21andsensory

Research into Sensory Processing Disorder✨

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I received a super interesting email about a research study into Sensory Processing Disorder from a lovely lady called Stephanie. Stephanie is an Assistant Professor in Sociology at Indiana University Kokom in the USA. Have a little read of the info below and contact her to participate in the study!

Are you a parent or caregiver of a child with diagnosed or suspected sensory processing disorder or “sensory issues”? Do you write about sensory processing disorder on public websites (e.g, The Mighty, Scary Mommy, Huffington Post, Mommyish, Babble, Baby Center Blog), your personal blog, or on social media?

If so, I would like to invite you to participate in a research study on talking about sensory processing disorder conducted by Stephanie Medley-Rath, a sociologist at Indiana University Kokomo. You are invited to complete a survey and participate in a private, online focus group on Facebook. This research explores how people make the invisible visible. In particular, I aim to learn how parents, caregivers, and individuals disclose invisible conditions (i.e., sensory processing disorder) in various settings.

I intend to have participants describe how they make their child’s invisible condition visible to their child’s teachers, doctors, parents of friends, neighbors, other family, among others. The purpose of this study is to examine the content (i.e., what) and the process (i.e., how) of narratives about sensory processing disorder.

If you would like to participate, please contact Stephanie Medley-Rath at smedleyr@iuk.edu. I will then send you an email with more details about your participation, an attachment of the informed consent document for your review, and a link to the survey to begin your participation. Thank you!

Stephanie Medley-Rath,  Assistant Professor – Sociology.

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Disclaimer: I have popped this research study up on my blog as I feel like its something interesting and potentially useful to anyone reading up or living with SPD too – I have not been paid or sponsored in any way.

A Sensory Book Review: ‘Baking for Dave’

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I have managed to finish the book ‘Baking for Dave’ (see my previous blog post – I’m known for my slow reading and slow processing speed so apologises for the wait!) so here is my book review…

Okay so firstly let me give you a little background in terms of the characters and storyline. The book is centred around a young girl called Iris Heller. Iris is 15 years old and has Sensory Processing Disorder. She finds it hard to cope with the outside world and becomes easily overwhelmed by lots of things such as loud noises, new places, meeting people, ordering at restaurants and changes in the weather.

Iris has coping mechanisms she uses in these situations such as humming, beatboxing, and making musical contraptions out of items around her. Iris lives with her mum Maisy but the book focuses on her quest to compete in a national bake-off contest. It’s the getting there that proves challenging though…

I don’t want to spoil the book incase you’d like to read it but below is a brief story description of the book taken from Amazon:

Iris Heller runs away to compete in a national bake-off contest. In order to get there, she “borrows” her mum’s car, travels through several states, and does the most terrifying thing of all — interacts with actual people! Iris has never been like other girls, but she’s not about to start letting that get in the way.

Iris has this profound fascination for the musician Dave Matthews, and she feels a compelling need to compete in the bake-off for Dave. It is this talent that gets noticed at several road stops along the way, which leads to her inevitable “gone viral” glory. At a donut shop, Iris sings like an angel. At a coffee shop, she plays a symphony using cups and the soda fountain. At a restaurant, she builds a glorious musical fountain out of dishes and pans. 

Iris’ mum (Maisy) and her best friend Eric set out to find Iris. All lives converge at Happy World, the Disney-esque paradise, where the bake-off takes place…

This book is absolutely ideal for anybody to read whether you have or know somebody with Sensory Processing Disorder or not! Also brilliant if you know someone who is a little bit sensory or autistic so I highly recommend to parents, carers, guardians, teachers, therapists and everyone in between.

I will be honest and say that I found it hard to read sometimes because of the sensory things mentioned so I stuck to reading it in small chunks and often. Iris tackles the most terrifying thing of all – interacting with new people along her journey. What I love about Iris is that although she is not like other girls, she doesn’t once let her sensory problems get in the way of her ambitions. Her family, friends and even new people she meets along her journey do their very best to try and accommodate her quirks and understand her more deeply which really was refreshing to read.

I was worried about how the book would end (what can I say, I hate a sad or happy ending I get emotional either way!) but this book surprised me by ending (no spoilers promise) in just the right way and it tied everything together nicely.

So what did I think overall? I saw so much of myself in Iris’s character. The way she struggles with new environments and forgets to breathe is a bit like me too! I learnt a lot from the main character actually, she comes across as the most genuine kind-hearted girl who brings the best out of the world and situations around her without knowing it. Despite the fact her life has been one of isolation and misunderstanding, she really does find out just how much she is loved in the end – definitely worth a read!

Buy a copy of the book in the UK here and in the US here

Note: I was given this review copy of the book free (which was super kind) but everything I have written really is my honest opinion ☺️

 

Sensory Book Review: Sneak Peek

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So the super lovely people at Sensory World (an American publisher who specialises in books on autism and sensory issues) have published a new title called Baking for Dave – a story of sensory processing, challenging yourself, and cupcakes!

In the UK, Eurospan is the distributor for Sensory World books, and they very kindly sent me a copy of the book to review! I am currently half way through the book (I’m a slow reader – sorry!) but I will be doing a review on my blog once I finish it – so keep your eyes peeled! 👀

Here’s a little bit about Melissa Palmer, the author of the book:

Melissa Palmer is a writer, nerd, baker, part-time kitchen dancer, and full-time mom. She pulls from her experiences with her own daughters — the two superheroes who shape and guide her life — to create the world and characters seen in Baking for Dave. 

Buy a copy of the book in the UK here and in the US here

Distractions & Fidget Toys

For Christmas I was given an Amazon voucher as a present. I then totally forgot about this and then remembered in mid January I had this voucher and thought about some different ways I could spend it…

I find it hard to not fidget or get distracted by things. I find it hard not to get distracted from even the most simplest things like other people’s conversations, loud noises or music.

On top of these I find different environments and new places can send me into overdrive – so something as simple as a toy to fidget with in my pocket can be super helpful.

I remembered once having an awesome toy called a Tangle. Essentially it’s a plastic loop which can be fiddled with and worked in different ways to make different shapes. I like to wrap and unwrap mine around my fingers in my pocket. They can be used by one or both hands easily so ideal for using discreetly in a pocket or under a table.

The Tangle comes in pretty much every colour imaginable and are just brilliant to fidget with! I bought mine from Amazon (UK) for ÂŁ 5.95 and they come in different sizes too.

So that was some of my voucher spent! I then had another think about something else I could use to distract myself or just use in a creative way to relax. Recently on social media I had seen lots of videos going round featuring amazing creations made from little magnetic balls. See this video below if you aren’t sure what I am talking about:

https://www.youtube.com/a shared?ci=MQ-4CbEgyNU

The idea is that these magnetic balls provide a creative outlet which is stress relieving and actually quite relaxing! You can be super creative with them or just create patterns and shapes with them – ideal for using on a tabletop or at the end of the day to calm down a busy brain.

Let me know of any other fidget toys you know of or that have helped you!