The Constant Autistic Internal Monologue

Hi everyone here again to share another drawing…this time on the ‘Constant Autistic Internal Monologue’ which is something that I experience.

Let me explain it a bit more…I didn’t realise (until literally the day of my autism assessment) that most people don’t have a constantly internal monologue running inside them. I was chatting to my assessor and casually explained that I have this constant running internal monologue inside of me of how to act, be, live, etc. By this I mean a constant voice inside me (that is me, not a separate person) telling me things like:

  • ‘Try and keep eye contact Emily!’ 
  • ‘Maybe sit up straight and try and look a bit more interested?’
  • ‘You might be walking to close…maybe back off a bit?’
  • ‘They might want a handshake? A hug? Be prepared’
  • ‘Does my face look engaged? Is my expression okay?’
  • ‘Am I looking awkward?’
  • ‘You could go sit in the toilet for a bit and decompress?’
  • ‘Did I not talk enough? Did I come across weird?’

(As you can see it can be in a range of person tenses and talks in present and past tense too)

It’s constantly suggesting things to me and is very wary of not fitting in and seeming different. It warns me of things, prompts me to maybe do things which would seem more ‘normal’ and it’s not something I can switch off. I think it is a part of masking but it is not something I cannot drop (v.frustrating). It’s something I have always had, I remember it right the way through school trying to guide me and failing to help me. Also as you can imagine, this continuous internal monologue is taking up a hell of a lot of my brain power and I am dealing with this on a daily basis alongside just existing and juggling things like work and my mental health…which isn’t ideal.

The suggestions aren’t always helpful too which is frustrating because it’s hard to ignore or not listen to them or at least take them on board. I wanted to share this in case it’s something others struggle with too though and because it was something I thought was built into everyone (apparently that’s not the case!).

Hope this all made sense.

Is this something you struggle with too? Let me know in the comments below.

Describing Masking šŸŽ­

'What is masking' written in black with six hand drawn images below with text describing each written in capitals underneath:
- Hiding your feelings and mood: A blonde girl with a teal jumper is covering her face so you cannot see it
- Imitating facial expressions: A girl with black curly hair and a pink jumper is holding a handheld beauty mirror up practicing facial expressions in the mirror
- Trying not to go non verbal: greyed out volume sign with a red 'x' over it shows no sound and a pair of blue over ear noise cancelling ear defenders next to it.
- Bottling up anxiety, thoughts and stims: lots of coloured water in water bottles jiggling around representing bottled up emotions!
- Trying to focus on conversations but zoning out: Colourful speech bubbles filled with text saying 'are you listening, no thanks, got to go and sorry'
-Trying to act 'normal': Boy with a bright mustard top on with a mask on his face
Text under: This can lead to autistic burnout + sensory hangover

Hello everyone I’m here again to share another drawing, this time on masking šŸŽ­.  I did one a while back when I first started out sharing my illustrations here on Instagram. I don’t love how it looks so decided to redraw it!

So what actually is masking? 

Masking involves trying to hide being autistic so others will accept us. It’s also referred to as camouflaging. This means we act in ways that other people will think we are ā€˜normal’ and to try and be accepted socially. My drawing includes a few examples of trying to mask.

Over the course of my life I feel I have perfected the art of masking (which isn’t necessarily a good thing). I am extremely good at with-holding my feelings and emotions, bottling them up until I get home. I would cry when I had to go to primary school each morning. Then speed forward a bit in time and I’d come home from secondary school each day very tearful. I even used to cry up in the SENCOs (special needs support) room at break and lunch times because secondary school is quite literally THE most overwhelming place I have ever had to cope in šŸ‘€.

But slowly through sixth form and university I began to build up a resilience to the world and although I still get overwhelmed I can always come home, have a bit of a sensory meltdown (and a good cry) then move on with things. 

Socialising will always be hard for me and I think I will always cope with the world like this. But that’s okay. I have to actively remind myself that ā€˜normal’ isn’t real. And I think you should too. Masking is an autistic and sensory way of coping with the everyday and just trying to get by. Now that is brave. To go out in the world and just exist is a huge thing.

Do you have any tips related to masking? Feel free to share below ā˜ŗļø

Masking and Camouflaging šŸŽ­

Hi everyone. I did a series of drawing on Masking and Camouflaging as an autistic person (see slideshow above!) So what actually is masking?Ā Masking involves trying to hide being autistic so others willĀ accept us. It’s also referred to as camouflaging. This means we act in ways that other people will think we are ā€˜normal’ and to try and be accepted socially.

I usually don’t include a lot of wording in my work but I had lots to say about this topic and could have made more designs! Image description is in the individual image alt text on my Instagram post here

I’d love to know what you think and if you relate to anything I mentioned, feel free to comment down below! And yes I have been in a situation before when a hospital consultant (yes really) told me I didn’t look autistic šŸ‘€ honestly baffling.

Also just want to mention I’ve got a new 21andsensory Podcast episode going live tomorrow at 1pm U.K. time with the lovelyĀ @zara.bethxĀ who last night hit 1 million followers on her TikTok account which was a huge achievement! So make sure you tune in via Spotify, Apple Podcasts or wherever you usually get your podcasts!

Interoception (inner sense) drawing…🧠

Hello! Here is drawing number six (part of a series on our 8 senses, scroll back in my feed to see my previous drawings!) āœļø which is all about Interoception which is a lesser known sense that actually helps you understand and fell what’s going on inside your body (think of it as an inner sense)…

  • A sensory diet is important! It’s a way of self regulating (like using fidget and stim toys) and usually involves physical activities like rolling on a yoga ball, having time on a swing or trampoline, heavy work activities like using weights or lifting and carrying things. The idea is a sensory diet helps you to become more grounded as you are getting the regular input that your body needs. As a result you may feel calmer and more in control of your behaviour and mood. I’ve definitely seen the benefits of having a sensory diet (for example I use a therapressure brush to do body brushing which has helped me to desensitise my limbs to touch).
  • I never feel full…like my stomach and brain just doesn’t have that sense wired in..it’s really odd and can be annoying (comment down below with a hands-up emoji to join the club) I experience this even more in restaurants, due to the busy, noisy environment I literally cannot connect to what my stomach is feeling because I am filtering so much other information.
  • Visual cues – these can be super helpful, especially to remind ourselves to do daily tasks like personal hygiene, to drink and eat enough and what to expect during the day. I know a lot of people use social stories (google the term for more info, they were developed by Carol Gray in 1991) as a tool to help with self care skills, social skills, changes in routine, etc. You can make Velcro versions so you can easily change out what your day looks like.
  • Hypersensitivity to pain…if you’re a sensory being you may well be hypersensitive (over-sensitive) to pain…I know I am!! I am very tuned in to pain and when something hurts it REALLY HURTS even if it’s something small like a cut it’ll be super distracting to me. Equally you may be hyposensitive to pain (under-sensitive) and not realise if you are hurt/injured.
  • Grounding exercises – these are super useful when your mind is whirring, thoughts swirling and your heartbeat feels a bit rapid and all over the place. Most smart watches have in-built breathing exercises / apps built into them (e.g Apple Watch does, my Fitbit does too!) and these can be helpful in terms of distraction by looking at something visual and timing your breath along with an animation. Of course there are lots of different grounding exercises, another good one to use when you are overwhelmed is to sit and use your senses to ground you, name a few things you can hear, smell, touch, see, etc. This can diverts your brain and distract you.
  • Alexithymia is a difficulty in recognising emotions and identifying feelings. This is something my autism assessor said she think I might struggle with. I definitely find it super difficult to explain my feelings to others because I genuinely cannot recognise or process my own emotions.

    Do comment down below if you can relate to anything in my drawing or anything I’ve said, I’m always keen to hear how everyone copes with these things. Two more drawings to go in this little series!

A new 21andsensory podcast episode!

In this month’sĀ episode I had aĀ chanceĀ toĀ speakĀ toĀ theĀ veryĀ lovelyĀ EmilyĀ (find her @autie__eevee on Instagram). We spoke about a wholeĀ range of things such as her self diagnosis of Autism and her journey to be formally assessed, her first year studying Fine Art at university,Ā her special interests and hobbies and about her amazing Instagram account!

Search for the 21andsensory podcast wherever you get your podcasts from!

Apple PodcastsĀ  Ā Google Play MusicĀ Ā OvercastĀ  Ā Pocket CastsĀ Ā Spotify

I was interviewed on the ā€˜Thoughty Auti’ podcast! šŸ§ 

Hey everyone! Last week I was interviewed by the lovely Thomas from @aspergersgrowth on his podcast ā€˜Thoughty Auti’.

It went live last Saturday so go check it out! It’s everywhere you’d normally listen to podcasts and also on his YouTube channel too! Was such a nice chat and we talked all things sensory and autism related. Let me know what you think šŸ’­

Links to the podcast:

Or search ‘Thoughty Auti’ wherever you usually listen to podcasts!

Aspergers Growth / Thomas’s links:

I was a guest on another Podcast…šŸŽ¤

This is just a lil’ post to say that the lovely Nikki from @teachingautism interviewed me on her podcast recently and here is the link to the episode:

Teaching Autism: 21andsensory Podcast Episode

Do have a listen either on her website, Apple podcasts, Spotify, or wherever you listen to podcasts usually šŸŽ§

The episode is all about ā€˜masking’ as an autistic / sensory person. Thanks again to the lovely Nikki for having me on, and do check out her website here šŸ™‚

Here’s what Nikki wrote in the podcast description:

Today on the podcast I’m talking all about autism masking and sensory processing disorder. I receive a lot of messages and emails from you all about masking or camouflaging. And I thought the best way to help answer your questions – was to do a podcast episode on the subject!

I love being able to share my knowledge with you all, this time I wanted personal experience. I came across Emily on Instagram when she shared a great visual image about masking. And that’s when I knew, Emily would be perfect to come on my podcast.

Emily is diagnosed with sensory processing disorder, and she is currently going through the diagnosis process of autism. She is the creator of 21 and Sensory. And on here, she shares her daily life and experiences to spread awareness and acceptance within the community.

WHAT ARE WE TALKING ABOUT?

Today on the podcast, we are talking all about;

  • Who is Emily?
  • What is masking?
  • Why might someone mask?
  • What affect can masking have on an individual?
  • How do people mask?
  • What way can others in the community support you?
  • Emily’s personal experience

This is such an open and honest interview from Emily. I hope that you’re able to take away some ideas and knowledge from this epsiode today.

HELPFUL LINKS AND RESOURCES

I would love for you to share this episode with your friends and colleagues for them to find out more too! And if you love listening to podcasts, you can find more on iTunes or my website here.

What is masking? šŸŽ­

Hello everyone I’m here again to share another little doodle, this time on masking šŸŽ­. So what actually is masking? Masking involves trying to hide being autistic so others will accept us. It’s also referred to as camouflaging. This means we act in ways that other people will think we are ā€˜normal’ and to try and be accepted socially. My doodle includes a few examples of trying to mask.

Over the course of my life I feel I have perfected the art of masking (which isn’t necessarily a good thing). I am extremely good at with-holding my feelings and emotions, bottling them up until I get home. I would cry when I had to go to primary school each morning. Then speed forward a bit in time and I’d come home from secondary school each day very tearful. I even used to cry up in the SENCOs (special needs support) room at break and lunch times because secondary school is quite literally THE most overwhelming place I have ever had to cope in šŸ‘€. But slowly through sixth form and university I began to build up a resilience to the world and although I still get overwhelmed I can always come home, have a bit of a sensory meltdown (and a good cry) then move on with things.

Socialising will always be hard for me and I think I will always cope with the world like this. But that’s okay. I have to actively remind myself that ā€˜normal’ isn’t real. And I think you should too. Masking is an autistic and sensory way of coping with the everyday and just trying to get by. Now that is brave. To go out in the world and just exist is a huge thing. Do you have any tips related to masking? Feel free to share below ā˜ŗļø