Medications and being sensory

I’ve been wanting to write a post on my feelings on medications for a while. Have they helped me? What have I found difficult about them?

Medication is weird. Each time I try a new one it’s like a huge big change and I battle with the pros and cons each time.

Mental health medications:

I’ve tried them all. Well it feels that way. Since the age of 15/16 I’ve tried all sorts. Some with weird side-effects and some that have proven to be helpful enough that I’ve stayed on them for years. I have been/I’m still on a few. I’ve tried anti-depressants, anti-psychotics, anti-anxiety medication, etc. I’m currently on two medications for my mental health. I use a weekly pill box so I know what to take each day.

Annoying side effects I’ve come across:

  • Never feeling full and always feeling starving hungry
  • Muscle twitching. Not ideal when you’re sat in a meeting at work and your entire leg twitches throwing you forward in your seat a bit (true story #lovinglife)
  • I regularly forget to take the flipping medication (not a side effect just Emily’s rubbish memory)

Cholinergic Urticaria:

Think of it like a rash / hives. I take anti-histamines to control it, otherwise I flare-up and look like a tomato. Think Violet from Charlie and the Chocolate Factory (but red) and you’re not far off. If I’m honest I still flare-up and go bright red and develop a nice patchy rash in these places:

  • All over my face
  • Chest
  • Arms
  • Hands / knuckles
  • Legs / knees

Very random. Read more about my cholinergic urticaria in a previous post here: Cholinergic urticaria…and what on earth it is.

Other:

Night sweats. I take a ridiculously accurate amount – 3 quarters of one tablet that’s how sensitive I am to this one. If I take a full tablet I find I don’t pee. Like all day. At all. This is not good apparently. (It’s a tablet that primarily elderly people can take to improve incontinence issues but it is also used to treat excessive sweating. Interesting right?!)

My conclusion:

I think medications have helped me. In the long run. They never seem to kick in for what seem like months and then I feel more stable without realising and wonder if it’s the medication that’s built up in my system and is finally kicking in. Of course I’m no doctor or medical professional. Some people just don’t find medications work for them or have never tried them. And that’s okay too. It’s so hard to tell what’s helping and what isn’t so I totally get that. For me it’s something I think I’ve found beneficial and I have followed my own doctors advice on what he feels is best for me.

One thing I want to mention is that side effects do indeed suck, I 100% feel for all those out there who find their medication is helpful but are then are stuck with annoying and sometimes plain weird side effects.

Why not listen to my podcast surrounding the idea of medications and mental health here

And just a tiny bit of humour to finish:

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Illustrations in the slideshow by the epic illustrator: Ruby etc

 

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The Mystery Blogger Award!

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Firstly I just want to say a big thank you to the lovely Bec for nominating me.  I would definitely recommend popping on over to her blog here. Her blog focuses on anxiety/mental health and she shares some amazing thoughts and ideas on it!

This award was started by Okoto Enigma on her blog, it’s an award “for amazing bloggers with ingenious posts.” Click the link to the blog for details!

Here are the rules of this award:

  • Name the creator of the award and link their blog.
  • Place the award logo or image within your blog post.
  • Thank the person who nominated you and link their blog in your post.
  • Tell your readers 3 things about yourself.
  • Answer your nominator’s questions.
  • Nominate 10-20 people.
  • Ask your nominees 5 original questions of your choice.
  • Share 5 links to your best blog posts.
  • Notify each of your nominees by commenting on their blog.

Okay here goes…3 things about me:

  1. I love apples and blueberries. If I could eat them all day everyday I would.
  2. I love wearing Converses. I wear them 24/7 and luckily can wear them to work too!
  3. I love succulent plants I think they are wonderful.

If you could have the perfect 3 course meal, what would it be?

Ooooh. Okay erm…I’d say dough balls and garlic butter for starter (I love bland meals!) Veggie Spaghetti Bolognese for main meal and then definitely some form of ice cream for pudding!

What’s your biggest fear?

Now this is a tricky one. At the moment my biggest fear is socialising with people and loud noises! I am more then happy with great heights, rollercoasters, bugs, etc!

What would you say is your best characteristic?

Hmm. I love helping people out and problem solving things for people so I would say hopefully my best characteristic is being helpful 🙂

If you could go anywhere in the world, where would you go and why?

I love anywhere by the sea so I’d either say maybe somewhere in Devon or Cornwall or even somewhere on the coast in Italy!

How are you today? (Strange question, but I want to know how you’re doing)

I think I’m okay today. I’m also excited because it’s Friday tomorrow which means the weekend and less work stress!

Okay here are my 10 nominations:

  1. highlysensitivelifeblog.wordpress.com
  2. sociallyawkwarrd.wordpress.com
  3. introvertedthinkingblog.wordpress.com/blog/
  4. sensitivegiraffe.wordpress.com
  5. potsitivityy.wordpress.com
  6. anonymouslyautistic.net
  7. myanxietydiariesblog.wordpress.com/about/
  8. sensoryseastar.wordpress.com
  9. inmyaspergersworld.wordpress.com
  10. mariner2mother.wordpress.com

And my 5 questions for the nominees to answer:

  1. What makes you smile?
  2. Where would you most like to go no holiday next?
  3. If you had one day completely alone how would you fill your time?
  4. If you could have any job besides the one you have right now, what would it be?
  5. If you could rewind 5 years and give yourself one piece of advice, what would it be?

Lastly my five favourite blog posts I have written:

  1. My Sensory System
  2. Loud Environments
  3. Change and why its difficult
  4. Memes to do with me
  5. DIY Sensory Box

A Sensory Book Review: ‘Baking for Dave’

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I have managed to finish the book ‘Baking for Dave’ (see my previous blog post – I’m known for my slow reading and slow processing speed so apologises for the wait!) so here is my book review…

Okay so firstly let me give you a little background in terms of the characters and storyline. The book is centred around a young girl called Iris Heller. Iris is 15 years old and has Sensory Processing Disorder. She finds it hard to cope with the outside world and becomes easily overwhelmed by lots of things such as loud noises, new places, meeting people, ordering at restaurants and changes in the weather.

Iris has coping mechanisms she uses in these situations such as humming, beatboxing, and making musical contraptions out of items around her. Iris lives with her mum Maisy but the book focuses on her quest to compete in a national bake-off contest. It’s the getting there that proves challenging though…

I don’t want to spoil the book incase you’d like to read it but below is a brief story description of the book taken from Amazon:

Iris Heller runs away to compete in a national bake-off contest. In order to get there, she “borrows” her mum’s car, travels through several states, and does the most terrifying thing of all — interacts with actual people! Iris has never been like other girls, but she’s not about to start letting that get in the way.

Iris has this profound fascination for the musician Dave Matthews, and she feels a compelling need to compete in the bake-off for Dave. It is this talent that gets noticed at several road stops along the way, which leads to her inevitable “gone viral” glory. At a donut shop, Iris sings like an angel. At a coffee shop, she plays a symphony using cups and the soda fountain. At a restaurant, she builds a glorious musical fountain out of dishes and pans. 

Iris’ mum (Maisy) and her best friend Eric set out to find Iris. All lives converge at Happy World, the Disney-esque paradise, where the bake-off takes place…

This book is absolutely ideal for anybody to read whether you have or know somebody with Sensory Processing Disorder or not! Also brilliant if you know someone who is a little bit sensory or autistic so I highly recommend to parents, carers, guardians, teachers, therapists and everyone in between.

I will be honest and say that I found it hard to read sometimes because of the sensory things mentioned so I stuck to reading it in small chunks and often. Iris tackles the most terrifying thing of all – interacting with new people along her journey. What I love about Iris is that although she is not like other girls, she doesn’t once let her sensory problems get in the way of her ambitions. Her family, friends and even new people she meets along her journey do their very best to try and accommodate her quirks and understand her more deeply which really was refreshing to read.

I was worried about how the book would end (what can I say, I hate a sad or happy ending I get emotional either way!) but this book surprised me by ending (no spoilers promise) in just the right way and it tied everything together nicely.

So what did I think overall? I saw so much of myself in Iris’s character. The way she struggles with new environments and forgets to breathe is a bit like me too! I learnt a lot from the main character actually, she comes across as the most genuine kind-hearted girl who brings the best out of the world and situations around her without knowing it. Despite the fact her life has been one of isolation and misunderstanding, she really does find out just how much she is loved in the end – definitely worth a read!

Buy a copy of the book in the UK here and in the US here

Note: I was given this review copy of the book free (which was super kind) but everything I have written really is my honest opinion ☺️

 

200 Blog Posts!

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My last post discussing being sensational was my 200th post on my blog! I also now have over 260 subscribed followers of my blog so I thought I would take the opportunity to thank everyone for following – it means a lot that people actually read what I say and I absolutely love reading the emails and comments I get.

Don’t forget to check me out on Twitter and Instagram: @21andsensory

New Year, Same Me.

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Happy New Year! Hope everyone had a relatively calm and enjoyable time off. Also hope you all received nice presents (Anyone get any good sensory / therapy toys?)

So I noticed last week that there’s been a lot of New Year resolution’s and ‘fresh beginning’ stuff on the internet. People have been reflecting on 2016 and there’s lots of talk about ‘making everyday count’. That’s all fine and well but all this talk of change has got me thinking:

It’s 2017. But I’m still the same old me.

A new year won’t change who I am or magically improve my sensory problems. I don’t mean for this to sound negative and actually, in fact, I think it’s a positive. I remember always joking with my mum about how many doctors and therapists would ask me ‘If you could wave a magic wand at your problems…’ I won’t bother even finishing that sentence because the reality is that’s never going to happen and would only frustrate me further.

So I decided putting all these thoughts together that my own little unique New Year’s resolution is to challenge myself to embrace who I am more. I shouldn’t have to worry about being judged when I need to explain to people who just don’t understand the way I am and don’t ‘get’ me, and neither should you! So why not challenge yourself? It’s only day 9 of January and it’s not too late to have a go 🙂

To round this New Year’s post off I felt like writing a little insight (which happens to just link nicely with the main image above!):

I am always forgetting and then realising again that I will always be a little bit ‘sensational’.

And do you know what?

It’s more than okay to be sensational. 

(Drawing by  check out her work if you haven't heard of her!)

 

The Electric Toothbrush 🏁

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I bought an electric toothbrush (*shock horror*) and I am slowly getting used to using it. I have always found brushing my teeth particularly hard because it always seems to be overwhelming sensory-wise. I have to brush quickly and I apply a lot of pressure as I can’t stand light touch. My teeth definitely look better as a result of having an electric toothbrush as it really can brush places that I can’t reach so well (just wish it wasn’t so loud!)

If I really think about it I have always been rubbish when it comes to brushing of any sort. Brushing my hair, brushing my body with my sensory brush, I’ve always found it difficult to manage and deal with the odd sensation of brushing. However I have tried lots of different brushes, which others might find helpful in order to help desensitise your body:

Have you found any good brushing coping mechanisms or tools that work for desensitising yourself? Let me know in the comments below!

The Podcast Debate…

 

I’ve been thinking….(which is dangerous I know) about maybe possibly starting a podcast… What do you reckon? Would you find this useful? I could do episodes on certain topics and answer peoples questions on everything sensory and more. I could maybe even have guests on to talk about their experiences regarding sensory processing disorder, autism, ADHD, OCD, and more?

Let me know what you think in the comments below!