My name is Emily, I’m 29 and I have Sensory Processing Disorder also known and referred to as SPD. I am Autistic (diagnosed November 2019, aged 25). More info on my diagnoses below.
I am an Illustrator, Graphic Designer and Podcaster who lives and works in the UK.
I started this blog in 2015 when I was 21 years old which explains the name 21andsensory 🙂
So what even is SPD? Here is a professional explanation…
Sensory Processing Disorder (SPD), exists when sensory signals are either not detected or don’t get organised into appropriate responses.
Pioneering occupational therapist, educational psychologist, and neuroscientist A. Jean Ayres, PhD, likened SPD to a neurological “traffic jam” that prevents certain parts of the brain from receiving the information needed to interpret sensory information correctly.
A person with SPD finds it difficult to process and act upon information received through the senses, which creates challenges in performing countless everyday tasks More info here
I started my blog and social media presence with the aim to bring people everywhere together to discuss their sensory problems and how they cope with their everyday lives. I really want it to be recognised that sensory problems aren’t something children necessarily grow out of but learn to live with and adapt to for the rest of their lives.
Under no circumstance may you reproduce, publish or distribute elsewhere, in any medium, any of my images for commercial purposes, without proper and prior written permission from me.
A bit more about me and my background…
My Sensory Processing Disorder diagnosis:
An Occupational Therapist (OT) diagnosed me with SPD when I was in primary school (I think I was around aged 8). I’ve tried lots of different therapies such as Cognitive Behavioural Therapy (CBT) and therapy sessions with CAMHS (child and adolescent mental health service, NHS, UK) as well as self-funding private therapy sessions. Unfortunately I found these unhelpful and they made me feel worse. I have found OT to be the most helpful form of therapy.
My Autism diagnosis:
I was on an NHS waiting list for an Autism assessment for 14 months (referred in September 2018) and I had my autism assessment on November 8th 2019. I found out I was autistic aged 25.
Read all about my journey to a diagnosis here. Also check out Episode 16 of my 21andsensory podcast discussing my journey to my diagnosis here. At my assessment I was also told I struggle with Alexithymia (a broad term to describe problems with feeling emotions). It’s explained as an inability to identify and describe/label emotions experienced by one’s self.
My personal life:
I have a first class (BA Hons) Graphic Design degree. I work as a Graphic Designer full-time and I am also a freelance illustrator and you can see my portfolio here and current projects I am working on here.
I struggle a lot with my mental health which is something I talk about here on my blog and social media. I have particular difficulties with anxiety and episodes of depression. I also struggle a lot with Dissociation (I experience Depersonalisation and Derealisation) which really impacts my day-to-day life.
I am also Dyslexic (I was only assessed and told I was dyslexic when I was 19 whilst at university!).
Read more / contact / follow me:
My blog post on my autism diagnosis and assessment
Also check out Episode 16 of my 21andsensory podcast discussing my journey to my diagnosis here.
Drop me an email anytime if you fancy a chat or have any questions: 21andsensory@gmail.com
Feel free to follow me on Twitter and Instagram
My 21andsensory podcasts can be listened to here and via the platforms below!
I’ve featured as a guest on these podcasts:
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- The I Can’t Stand Podcast by Peta Hooke (March 2022)
- The Autism Podcast by The London Autism Group (December 2021)
- Drop in the Bucket Podcast (September 2021)
- Psychology in the Classroom Podcast (June 2021)
- Autism Journeys Podcast (April 2021)
- Spotlight on FASD Podcast (March 2021)
- 1800 Seconds on Autism (BBC / BBC Sounds) (December 2020)
- Thoughty Auti Podcast by Thomas from @aspergersgrowth (January 2020)
- Teaching Autism Podcast with Nikki from @teachingautism (November 2019)
- Chewigem’s Sensory Matters podcast @chewigem (October 2018)
I am a Chewigem / Sensooli Affiliate! They are company who have years of experience, designing, adapting and creating a range of chewing, fidget and sensory aids for children and adults.
Use code: 21S15 for 15% off Chewigem Originals
Check out the Chewigem / Sensooli website through the link here!
Thank you for following my blog. I’m excited to follow yours. I’m the father of a 9 year old boy who is high functioning autistic. His biggest struggle is SPD though. He chews a lot. His biggest sensory struggle is clothing. There have been days he wouldn’t leave the house because he couldn’t tolerate the feel of any of his clothes. I hope to learn some things or at least understand him better by following your blog
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Hi and thank you for the follow 🙂
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Thank you to follow my blog and like my poetry. Hope you enjoy it 🙂
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Hi there, is your SPD over responsive or under or a mixture of the two? I’ve been waiting 9 months to see an OT as I need them to diagnose wether I have under responsive SPD and/or Dyspraxia. So I’m interested to chat to others that might be like me :0)
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Hi there! I am definitely just over responsive to everything. It’s a shame you have been waiting so long to see an OT but the wait will be worth it – I found mine really helpful.
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Ah ok. Your about page is really informative about the different therapies and such. I’ll have a read of some of your posts in a little while :0)
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Thank you for your like and follow and look forward to viewing your posts.
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Hi there
I am an OT and would fancy having a chat to exchange ideas. ..please email me at wrzopel@yahoo.com and let me know when some good times. I also am a sensory sensitive person and am always looking for idead for calming input for all the anxiety disorder kiddos who are increasingly being diagnosed at younger ages (elementary school age) TY!!
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Hi Wendy! Of course not a problem I will drop you an email today. It’s great you are sensory but also an OT! Sounds great no problem.
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I enjoy reading such honest words, it always reminds me of how valuable honouring these things inside us is.
thx!
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Hope you don’t mind, have passed the email onto my 14 year old.. In case he wants to talk.
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No I don’t mind at all! Would be lovely to chat 😊
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Not sure if he will – that’s another matter!
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Haha not a problem – Just let him know he can chat to me or ask me questions anytime if he feels like it 😊
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Hi
Thank you so much for finding my blog, liking a post and following me 🙂
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Hey Emily ❤️ I nominated you for an award, check it out:
https://aaaaleivkai.wordpress.com/2015/12/29/the-spirit-animal-blog-award/
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Oooooooh thank you so much! Will have a look now ☺️
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Go ahead! 😀
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Hi, I nominated you for the Spirit Animal Blog Award, you don’t have to answer of you don’t have time! You can read about it here on my blog: https://askateenageaspie.wordpress.com/2015/12/29/the-spirit-animal-blog-award/
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Im so sorry I haven’t replied to this comment earlier i just found it in my spam folder!? No idea why! Thank you so much for nominating me Im composing my post now 🙂
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HI
I have nominated you for an award, sorry if I missed if you were award free. If you would like to join in you can find the details here
https://itsgoodtobecrazysometimes.wordpress.com/2016/01/17/epic-awesome/
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Thank you for sharing!
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Thank you for the follow Emily. I love the way you write. Looking forward to reading more.
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Hi Emily. Do you know if SPD is always present from adulthood or can it develop later on
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I was assessed when I was 8 but I know many people who are aged between 20-50 who were assessed later on in life and found out about SPD or an Autism diagnosis…
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Sorry didn’t see this reply. Thank you for replying to my question. Do you know if these people had difficulties as children too or whether there difficulties just happened when they were older
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That’s okay – not a problem. I’ve heard of a mix really. Lots of people completely undiagnosed until their 20/30/40’s and people who realised looking back on their childhood some of the traits they were showing or parents noticing little Sensory things here and there and only really finding out years later it related to sensory processing disorder.
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Hiya! I was just wondering… you mentioned that you have anxiety issues as well as SPD. Do you find that you get more “sensory” when you’re more anxious or is it just the other way round? I find I get super sensory in situations like exams where I’m more anxious, even though the sensory environment normally wouldn’t be that bad? If that makes any sense?
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Hey 🙂 thanks for your comment – yup I do indeed, I definitely get way more sensory when I am anxious and I also used to get super sensory before exams or I find my OCD gets a bit worse because I am under more pressure/stress. I totally get what you mean, it’s weird because the environment wouldn’t normally make you feel sensory but because you are dealing with the anxiety everything seems to ramp up sensory-wise…It does make sense 🙂 If you can find coping-mechanisms that work for you that may help? (I used to have extra time in exams because of my processing difficulties / dyslexia and I used to do all my exams in a tiny quiet room which was helpful) If you’d like to chat more about sensory things feel free to email me 🙂
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Ah, really nice to know it’s not me going mad and that somebody else has it too! Thank you so much x
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Hi. Do you think you could do a post on occupational therapy? 🙂
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Sure I can definitely do a post on OT and how I found it – was there any particular questions you have about OT? Feel free to email me any: 21andsensory@gmail.com
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Please also see my new blog post on this here: https://21andsensory.wordpress.com/2018/04/14/a-little-but-important-qa/
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Thanks so much – the blog post was great 🙂
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Hey Emily! I just discovered you on Reddit. Really excited to read your blog and be inspired for my own. I just launched my blog this past week called: The REAL Princess and The Pea- a girl living with Sensory Processing Disorder (www.sensoryprocessingprincess.home.blog). I’d love for you to check it out and maybe even collab sometime!
Thank you for being so vulnerable about your life- it’s very brave and you are changing people’s lives. ❤
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Hi Erin! Thanks so much for your lovely comment – so glad you stumbled across my little blog! I’ll definitely be keeping an eye on yours too ☺️ it’s exciting you’ve started to document things. That really means so much – my sim when I started my blog was that if I could help just one person I’d be happy so that really made me smile 🙂
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Hello,
I stumbled upon your page while searching for low pain tolerance. My child has SPD. She was diagnosed at 3 years old. She’s currently 12. She has improved in many aspects and learned to deal with many things she had trouble with as a little girl such as hair washing and brushing, although still an issue for her but she does it. However her pain tolerance is non existent and it’s really affecting her life. Current issue is pulling out her tooth. It’s loose. She cannot pull it out. I tried to and she started having a fit. I asked if it hurt and she said no. Then what’s the proble? She said she didn’t like the sound of it. Not sure the best way to handle this. She is unsure as she understands its an exaggerated reaction but she says she can’t control it. Also she has trouble getting shots. She’s due for vaccination boosters for school and I’m not sure how we’re going to do this. Any recommendations?
Thanks!
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Hi! Thanks so much for leaving a comment on my blog and interesting to hear how you came across my site. That’s great to hear about your children and that she has learned to deal/cope with lots of things – I know how much effort it really takes. Ugh likewise – washing and brushing sucks but we have to do it anyways! Oh bless her – hmm I see what you mean about the pain tolerance. It’s not the pain that’s an issue it’s more the ‘thought’ of pulling the tooth (and the weird gap you have to get used to sensory-wise that it leaves behind). Interesting that she didn’t like the sound of it. Is this something you could potentially get around by her wearing headphones and listening to a favourite song or radio station as that’ll totally block out any weird noises it might make? Or ear defenders / noise cancelling headphones? It’s great that she understands its a reaction she isn’t meant to have and can recognise it but not control it. Ugh boosters are the worst. Random tip but honestly wiggling your toes whilst it happening really helped me because you are so focused on another area of your body and keeping up the wiggling that it totally distracts you from your arm / site of booster. Also again could she take in something to listen to the nurse could essentially do her booster without her listening to her prepping it and ripping medical packaging, etc? Hope some of this helps – feel free to email me 21andsensory@gmail.com if you’d like anymore advice or just a chat 🙂
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Hi Emily! I have been following your blog and instagram account for a while now as I have a son who is 4 and a half and on the spectrum and has SPD. I am looking for good resources to better support and better understand how he thinks and feels. I saw from your posts that you have read a lot of books on neurodiversity and would love to know your recommendations! Thanks in advance. ❤
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Hi Tanya, so sorry for the late reply – sometimes my comments go into a weird spam folder. Thank you so much for following my blog and instagram account – that honestly means a lot. Lovely to hear about your son and it’s so great to hear you are on the hunt for good resources. I do indeed read alot of books! I can certainly give you a list – would you like me to email or DM you on Instagram?
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